Favorite widget or plugin?
Oh, I don’t think I’m cool enough to have an answer to that question.
What’s one thing that people don’t know about you? I feel like I’ll talk about anything on my
blog! But people probably don’t know
that cold cereal is my very favorite food of all. Mmm, I wish I were eating some right now.
While we are at it, what’s your theme song? “Groove Is In the Heart,” by De La Soul.
Dish you would bring to our community picnic: Chocolate chip cookies. Or maybe fudge pie—I don’t love fudge pie,
but everybody else does.
What got you blogging and what keeps you going? I started blogging because my then-husband
and I lived in different states, and we’d moved away from the state where our
families live (Tennessee). The blog was a place to share what Charleston
was like, and then for us to keep in touch with each other while Walter was
finishing his last year of graduate school.
What keeps me going is the fact that I love blogging. It’s a place
where I can get my ideas out in an informal, non-academic way. And I can get feedback and create a
One post you are really proud of, for whatever reason? This is an old post, from 2006 on “Baxter Sez,” called “Hairy-Legged Feminist”
The byline is Biffle, but I wrote
it. It has nothing to do with Down
syndrome. People love it. I’m proud of it as much as anything for the
impact it’s had. We don’t talk nearly
enough in mainstream American culture about the possibility of letting your
body hair grow.
How have you seen your blog/blogging style change and how
would you like to see it develop? My
blog has become a little more focused on Down syndrome and disability studies,
as well as reproductive justice—the topics I’m researching right now. I don’t want that to become the focus of my
blogging, though. I appreciate the blog
because it’s a site where I can articulate and explore anything I want to. I gave the new blog the name “Every little
thing” because I want it to be a space for whatever I’m interested in.
Two blogs you love to read and why? I love “a moon worn as if it had been a
a blog by Elizabeth Aquino who is a fantastic writer. Her daughter has epilepsy, and that’s
something she blogs about quite a bit, but she also blogs about politics, food,
parenting, poetry—I always enjoy going over there. Another I really enjoy is “Viva la Feminista”
(http://www.vivalafeminista.com). Veronica Arreola is a scholar, activist, and
mom, and she’s becoming a bigger and bigger name online!
Name: Stephanie Meredith, Nancy Iannone, and Missy Kline Skavlem Blog Name and URL: Down Syndrome Pregnancy, downsyndromepregnancy.org Blogger or Wordpress? Wordpress Favorite widget or plugin? Google Analytics What’s one thing that people don’t know about you? Managed the translation of “Babies with Down Syndrome” into Russian and travelled to Russia in 2011 as a US Speaker on Down syndrome. Best experience ever! (https://www.facebook.com/pages/To-Russia-With-Love/193126564089443?fref=ts) While we are at it, what’s your theme song? Mumford and Sons “After the Storm” – Nancy and Stephanie’s favorite band Dish you would bring to our community picnic: Raspberry Trifle
What got you blogging and what keeps you going? I have worked as a technical writer since 1997 and worked as the Assistant Editor for Patricia Bauer’s Disability New Blog (www.patriciaebauer.com) from May 2008-December 2009. Nancy and Missy had been providing live support at BabyCenter for years and wanted a place where information could be consolidated in a meaningful way.
Then, Nancy, Missy, and I launched Down Syndrome Pregnancy, along with our book “Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome,” in 2010. Our point was to provide information and support to expectant moms in a “safe forum.” One of my best moments was a couple of weeks ago when I met a mom from Kansas City who told us our books, blog, and discussion board were her lifeline during her pregnancy. It’s amazing to know that we’re helping people across the country.
One post (that you wrote) that makes you laugh? Ours don’t tend to be funny since it’s not a platform for our personal expression. It’s more about providing information and sharing perspectives. But I loved the comments generated by this post: http://downsyndromepregnancy.org/diagnosis-day-parents-what-would-you-say-to-your-past-self/ I love reading the comments generated by the posts and the different perspectives shared from other moms among each other. Please add yours!
How have you seen your blog/blogging style change and how would you like to see it develop? I want the blog to become a more topical column within a website and to wrap the other informational parts of our blog into a website format with more photos and more modern design. We’re hoping to get this done in the very near future.
Down Syndrome Pregnancy is now part of the National Center
for Prenatal and Postnatal Down Syndrome Resources at the University of
Kentucky’s Human Development Institute.
The National Center includes
Lettercase, Down Syndrome Pregnancy, and Brighter Tomorrows. I work as the
Lettercase Program/Medical Outreach Director at the university, and Missy and
Nancy still volunteer for the blog and the BabyCenter board. All products are
free digitally, and all proceeds for print materials are used to support the
world changed when I had my hooligans- The blog documents my 20 month
old son Noal’s life & my start in Mummy~Hood & also shares our
journey with Down syndrome when my daughter Reid was born just a few
& the accountability it forced on me...I didn’t want to portray
that I was actually the person who did things I “pinned” without taking
the time/effort to at least try, create, make or do them...
Pass something on in life...
One post that makes you laugh? Hmmm
probably my entire page dedicated to Operation Ellen- My hubs
challenged me to try & get Ellen’s attention when I first started
the blog...He truly thinks there is absolutely NO chance & has even
stated that he would get a much despised tattoo if I do...Taking the
challenge on I have made a fool of myself with videos, photos &
annoying blog post to try & get her attention...No such luck yet-
But I have hope..
Favorite widget or plugin?Wordpress.com
doesn't let us use plugins and I'm still learning how to use widgets.
If I could use plugins, my favorite would be Google Analytics plug-ins.
The information on Google Analytics enabled me to transform the reach
and influence of my work blog, a blog for the specific type of law that I
do in my day job.
Dish you would bring to our community picnic:
Homemade spaghetti and meatballs, using the recipe that our family has
used every Sunday since time began, I think. (We call it macaroni and
What got you blogging and what keeps you going?
I started blogging to process some of what I was experiencing as a
40-something dad with a newborn baby diagnosed at birth with DS.
keeps me going is the freedom of writing what I want, how I want, when I
want, and sometimes having a dialogue grow out of it.
One post that makes you laugh?This
was a tough one. When I go back and read my post "Schedule versus
Routine: which is which", I laugh when I think about the day my wife and
I had the "sign" battle over napping and playing.
One post you are really proud of, for whatever reason?
sound of terror" is my favorite post, so far. When I read that Ethan
Saylor's last words were "I want my Mommy", my heart cracked in 2. It
breaks my heart to think of someone in that much terror that they cry
out such a primal plea for help and mercy. The idea that someone's
child could die in such a state of fear cuts me to the core.
wanted to try to help others experience become aware of the intensity
of his last moments; I believe that change only comes when powerful
emotions have nowhere else to go.
Name: Michelle Arthur Blog Name and URL: The Hailey Herald http://thehaileyherald.blogspot.com Blogger or Wordpress? Blogger Favorite
widget or plugin? Feedjit. I like seeing where my readers are from or
how they found the blog (was it google, FB, or from another blog) and
what they entered as a search. Getting to Know You: What's
One Thing People Don't Know About You? The only career I really ever
wanted was to be a mom. My second choice was teaching and I graduated
with a bachelor of arts in mathematics and a minor in Business
Administration. I've worked for a coal mining company, a cabinet
manufacturing company, an amusement park, a homebuilder, a waterpark, a
bank, a county job and family services department and lastly a drug
testing company (yes, a urine collector). Dish
you would bring to our community picnic: Either a giant fruit salad
(the boys are so picky about potlucks) or some rich chocolatey dessert
that I really want to eat, but don't want the entire dessert in my house
because I will eat it all.
What got you blogging and
what keeps you going? Blogs were a saving grace for me while Hailey
was in the NICU and while awaiting her open heart surgery. I could read
them at 2 in the morning while most of the world slept. I didn't have
to face anyone. I didn't have to speak about anything. I continue
blogging in the hopes of changing people's hearts and minds about Down
syndrome. With a birth diagnosis, I felt guilty that I was so upset and
thought it wasn't normal. Reading blogs helped that. Hopefully other
mothers can read Hailey's blog and realize the emotions are normal, they
are not alone and that life will get better! One
post that makes you laugh? I really need to learn to write funny.
This one makes me laugh because Hailey truly is a hurricane. http://thehaileyherald.blogspot.com/2012/11/hurricane-hailey.html One post you are really proud of, for whatever reason? http://thehaileyherald.blogspot.com/2013/01/wanting-others-to-see-now.html and also this one... http://thehaileyherald.blogspot.com/2013/03/i-dont-miss-it.html How have you seen your blog/blogging style change and
how would you like to see it develop? I'm afraid my blogging is
getting more boring. I don't feel like my content is as good. I am a
very emotional writer and the emotions aren't as new and raw as they
once were. Hopefully I can improve on that and find more topics that
will grab other's attention. I will say I do not sugar coat. I am
honest with how I feel, if I am mad at the world because #47 affects so
much, or if I'm elated about something most people find trivial.
Where else can we find you online? I'm
on FB and Pinterest under my name. I just joined the rest of the world
this past week with a smartphone...I have to ease into some of this